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Outpatient Surgery Since Last Cancer Update

May 7, 2020 Featured, Steve Patterson Comments Off on Outpatient Surgery Since Last Cancer Update

At the end of March I wasn’t feeling well, temporarily stepping away from blogging on a regular schedule.

I wrote, in part:

March 2020 has been difficult. My last treatment was March 2nd. Since then my appetite has dropped off a cliff. Eating less, I haven’t my usual energy.  I’m not walking around our apartment as much, I’m sitting more and napping more.

Despite standing up when my Apple Watch tells me every hour I’ve developed couch sores on my rear end. This encourages me to spend more time in bed.

My day naps got longer and longer, throwing off my sleep schedule at night. Not being active has brought back the muscle spasms in my left limbs — a result of my 2008 stroke. 

At my late March oncology appointment my doctor diagnosed my problem: adrenal insufficiency. Basically my kidney cancer was screwing up my adrenal glands. The prescription quickly changed my energy levels & appetite — I feel like 30 again! I’m easing off the drug now, will meet with a endocrinologist next month to look into my adrenal glad issue.

In April I had outpatient surgery. Though not elective, it was welcomed. I inherited my mom’s tricky veins so I had a “port” implanted in my chest to make blood draws and infusion treatments easier.

A sign on the Washington University Medical/BJC campus

So while I’m feeling well again I’ve enjoyed not having to stick to a rigid self-imposed 4 day per week schedule. As I’ve been doing the past few weeks new blog posts will come as I have time and a subject that interests me. I’ll have at least one blog post per week.

In a future post I’ll share what it was like to have surgery and get cancer treatments during this epidemic. Stay safe everyone.

— Steve Patterson

 

Poll: Feelings on voting by mail?

May 3, 2020 Featured, Politics/Policy, Sunday Poll Comments Off on Poll: Feelings on voting by mail?
Please vote below

As a person with disabilities I vote by mail, via absentee ballot. For most voters in Missouri & Illinois, you must go to your assigned polling place on Election Day. Coronavirus has some wanting to vote by mail in future elections.

Currently, state laws on the use of mail voting are a patchwork quilt. Only five states regularly conduct mail elections by default: Colorado, Hawaii, Oregon, Utah and Washington. Three more, though, do allow counties to opt into mail voting, and nine more allow certain elections to be conducted by mail — although these are typically low-turnout, local elections, a far cry from the 2020 presidential race.

Another 29 states (plus Washington, D.C.) give voters the option to vote by mail — also known as no-excuse absentee voting — in federal elections, but the burden is on the voter to request her ballot. The remaining 16 states still require voters to provide a valid excuse if they want to vote by mail, although this year, some states may accept concerns around the coronavirus as an excuse. (New Hampshire has already moved to do that for the general election.) (fivethirtyeight.com)

Voting by mail isn’t universally accepted as secure.

This poll isn’t just about having mail as an option — but to hold elections entirely by mail. No polling place on Election Day.

This poll will close at 8pm tonight. Illinois voters will soon be able to apply for a vote by mail ballot — click here for more information.

— Steve Patterson

 

Poll: What concerns you more about stay-at-home restrictions?

April 26, 2020 Featured, Sunday Poll Comments Off on Poll: What concerns you more about stay-at-home restrictions?
Please vote below

I wasn’t planning to do a poll today, but a CBS News poll from a few days ago seemed to straightforward to ignore.  The subject is about stay-at-home orders.

One question, two possible answers presented in random order:

This non-scientific poll will close at 8pm tonight. You can check out this question and many others from the CBS News poll here.

— Steve Patterson

 

 

Temporarily Going From Four Posts Per Week To Infrequent Posts

March 29, 2020 Featured, Site Info, Steve Patterson Comments Off on Temporarily Going From Four Posts Per Week To Infrequent Posts
A 2012 photo of me on a MetroBus

When I first announced last Halloween that I had stage 4 kidney cancer I said I hoped to continue blogging — keeping up my four posts per week schedule  November though February was manageable.

… Continue Reading

 

A Difficult Three Weeks, But We Have Toilet Paper

March 23, 2020 Featured, Popular Culture, Steve Patterson Comments Off on A Difficult Three Weeks, But We Have Toilet Paper

My most recent immunotherapy treatment was three weeks ago. Since then I’ve been especially tired and have had almost no appetite. Normally I’d be baking bread, making dinners from scratch, etc. I’d been eating so well I gained 5lbs my last visit. I’ll lose wait again my next treatment day, a week from today.

The last three weeks have been anything but normal, for anyone. Very surreal.  Seeing photos of stores being out of toilet paper made me regret not buying more on our trip to Costco last month.

My last time outside of our apartment was Saturday March 7th, we went to ALDI for our regular monthly trip. They had toilet paper, but we didn’t buy any — though I later wished we had.

My husband is a home health aide, so he’s out most days helping his clients in their residences. This includes doing their grocery shopping for them. After he finished one day last week he stopped at a nearby Costco to pick up items on the list I’d given him. Normally we’d go together, but I was too tired and I didn’t want to be exposed to other people.

My husband took a few pics, like crates at the entrance to demonstrate social distancing.
A sign on a crate lists items that are out of stock — like toilet paper.

As we’re putting away what he’d purchased I hit the jackpot. On the very top of our tall pantry shelves…six rolls of toilet paper!

This package of 6 rolls is part of a larger bundle of 30 rolls.

Yeah, there go my fears of running out.  Of course, we don’t know how long all this will last.

— Steve Patterson

 

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